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electronic questionnaire on Cumulative Life Course Impairment in skin diseases - retrospective/prospective

 

eDermCLCI-r & eDermCLCI-p

 

Cumulative life course impairment assessment made easy and quick

edermclci pdf

Illustrative PDF

(coming soon)

edermclci pdf or

Original PDF

(coming soon)

What are the eDermCLCI-r and eDermCLCI-p?

The DermCLCI-r and DermCLCI-p are two measuring instruments developed to determine the Cumulative Life Course Impairment (CLCI) in skin diseases. The DermCLCI-r instrument determines retrospectively which changes and effects the patients have already experienced due to the disease over their entire disease course. In contrast, DermCLCI-p determines the patient's current situation and thus identifies risk areas in which the patient could experience burdens in the future. This allows the patients to be supported as soon as possible.

 

 

Validation of the questionnaires

paper version: no            digital version: no

 

How to use the eDermCLCI-r and eDermCLCI-p

DermCLCI-r and DermCLCI-p were developed for use in adult patients with psoriasis, atopic dermatitis, and hidradenitis suppurativa. Both questionnaires consist of 30 questions covering all areas of life. Each question is scored on a scale from 0 (not at all) to 3 (very strongly). 

 

In addition, for each question, the DermCLCI-r records whether the burden is still ongoing and whether it was life-changing. Finally, the DermCLCI-r asks about the average burden of the disease at different ages.

 

Both measurement tools were developed according to the international guidelines for the development of patient-reported outcomes.

 

dermclci howtouse

The following versions of the eDermCLCI-r and eDermCLCI-p are available

edermclci pdf

Illustrative PDF

(coming soon)

edermclci pdf or

Original PDF

(coming soon)

The importance of measuring cumulative life course impairment in skin diseases

Patients with chronic skin diseases experience a wide range of burdens, such as physical, psychological, or emotional impairments. Social life is also often influenced by skin diseases. These situations and burdens can accumulate over lifetime.

 

The concept of Cumulative Life Course Impairment (CLCI) describes the cumulative burden of the disease over the patient’s life course. These changes over the life course can be irreversible, and thus, triggered by the disease in combination with various inclusion factors, irreversible damage is caused to the patient.

 

The measurement of cumulative impairment over the life course is of great importance as it allows to assess and understand the overall impact of skin conditions on patients’ lives over time.
The DermCLCI-r can be used to assess the cumulative burden since the onset of the disease, while the DermCLCI-p facilitates early and appropriate (dermatological and psychosocial) treatment and can thus contribute to the prevention of CLCI.

 

Features

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USER-FRIENDLY

The eDermCLCI-r and eDermCLCI-p are easy to understand and can be simply handed to the patient who is asked to fill them in without the need for a detailed explanation.

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QUICK

Save time with our online tool. Fill in the questionnaires and your DermCLCI-r and DermCLCI-p scores will be calculated automatically.

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INFORMED TREATMENT

The eDermCLCI-r and eDermCLCI-p enable the physician to make informed treatment decisions based on patient-reported data.

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MULTILINGUAL

The eDermCLCI-r and eDermCLCI-p are available in different languages. The use of the respective first language reduces language barriers and supports the understanding between physician and patient.

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MONITOR IMPAIRMENT

Use the eDermCLCI-p to timely identify risk areas in which the patient could experience burdens due to skin disease in the future, facilitate timely and adequate treatment, and prevent further impairment.

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ACCESSIBLE FROM ALL DEVICES

With DermaValue, your eDermCLCI-r and eDermCLCI-p are always just a few clicks away. The application is available for PCs, tablets, smartphones, and other devices.

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PATIENT-CENTRED

Results from the eDermCLCI-r and eDermCLCI-p provide a patient-orientated analysis of the impact that chronic skin diseases have on patients' lives.

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RELIABLE

Studies have shown that the eDermCLCI-r and eDermCLCI-p enable the reliable assessment of previous and present cumulative burdens due to skin disease.

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ENVIRONMENTALLY FRIENDLY

Take care of the environment and save your patient data on the online platform or as PDF files for yourself and your physicians.

References